September 26, 2016

Kycie's Story

Kycie Jai Terry was born October 11th, 2009.   Kycie was the youngest of 5 children, and the only girl.  Protected and pampered.  Wholesome and daring.  In 2013 the Terry family welcomed their 5th boy to the family.  His name is Boston, but Kycie called him, "my baby."

2015 was looking bright for Kycie.  After years and years of begging her parents, Kycie got a dog of her own for Christmas.  She was busy playing with her puppy and preparing for her first year of competitive cheerleading.  One Sunday after church, Kycie complained of a headache.  The next day she stayed home from pre-school after she threw up and didn't feel good.  Tuesday she wouldn't eat and would only sip on Sprite and water, complaining her tummy hurt.  Wednesday she was seen by her doctor and diagnosed with Strep throat.  Thursday night her parents noticed she had lost a lot of weight, still wasn't eating and threw up several times through the night.  On Friday, January 30th, Kycie's parents took her to the ER in St. George, Utah.  There she was diagnosed with Type 1 Diabetes.  She was LifeFlighted 310 miles north to Primary Children's Hospital in Salt Lake City, Utah.

While in flight, Kycie's blood sugars began to drop rapidly.  Kycie and her mother landed in Salt Lake City around 6:00 pm.  Shortly after boarding the ambulance Kycie suffered a seizure.  She had another seizure just upon arriving at Primary Children's Hospital.

At first, her parents thought Kycie was in a diabetic coma and expected her to wake up any minute.  After about 24 hours of little progress, doctors ordered an MRI.  On Sunday, February 1st, doctors told Josh and Jamie that the MRI showed extensive damage to critical areas of Kycie's brain.  Most kids do not survive an injury like this, and those that do have little to no quality of life.  Her parents were devastated and spent the next 8 days in the Pediatric Intensive Care Unit praying and encouraging Kycie to fight.  They vowed that as long as she fights, they would fight with her.

Kycie surprised everyone and was able to breath without the help of a ventilator and did not need a tracheotomy.  She was moved to the Neuro and Trauma Unit to begin a long and painful recovery.  

Kycie's parents live in St. George, Utah which is located 310 south of Primary Children's Hospital.  Josh and Jamie Terry decided from the beginning that they would never leave Kycie alone.  Josh would drive to the hospital every weekend and back to southern Utah during the work week while Jamie stayed by Kycie's side.  
Overwhelmed with the new diagnosis of type 1 diabetes, its unpredictable sugar swings, shots and glucose checks, Josh and Jamie were dealing with the even more daunting fact that their little princess now had a severe traumatic brain injury.  Kycie would open her eyes for short periods of time, but made little purposeful movement.  At this time, Kycie was being fed though a tube in her nose and doctors wanted to place a more permanent feeding tube in her stomach.  Jamie worked night and day nursing Kycie back to health while feelings of guilt for leaving her 5 boys at home were only slightly blanketed by feelings of peace for caring for her sick and injured daughter.  

On May 14th, 2015 Kycie was released from the hospital and able to go back home.  This would be the first time the entire family was under the same roof since January 30th.  

As the Terry family pulled into St. George, they were met with a hero's welcome.  Fire trucks and police cars escorted the family to their house with hundreds of people lining the streets to welcome Kycie home.  

The spirit that accompanied Kycie filled the Terry house and Kycie was showered with kisses and hugs from her brothers that missed her so much.  They read her stories, played games with her, and sat in her bed to watch movies.  Kycie required care 24 hours a day.  Still unable to talk, walk, or feed herself, Josh and Jamie worked each day to help Kycie progress.

When Kycie was discharged the doctors told her parents that their number one concern for Kycie should be pneumonia.  After only 5 weeks of being home, Kycie came down with a cold.  She was admitted to the St. George hospital on June 30th and was LifeFlighted back to Primary Children's Hospital that same day.  

Pneumonia kept Kycie hospitalized for just over a week.  She slowly got stronger and on July 8th Kycie had recovered enough to be released and come back home.  She was only at her earthly home for another 3 days before passing away on July 11th in her father’s arms and with her mother by her side.   

This is Kycie's story, but she was so much more than a story. She was and still is a light to this world. Kycie's life changed millions of other lives for the better. Her family continues to share their journey and light to all who loved their baby girl. Their story is full of miracles and moments that brought them closer to God. 

Life hasn't handed them an easy road, but through their struggles they have taught others along their way how to stand tall. At the darkest time in their life they have become a light for others who have began to see they are not alone. Their story is one of loss and pain, but their example of hope and grace has impacted the world. 

The Terry's will be sharing their story at A Reason to Stand in St. George, Utah on October 22nd, 2016. Come be filled and share the day with us! 

Read more about the Terry's journey:

Related post: Nearer to Natalie

September 24, 2016

Even in the dark...

I used to stare out into the dark of the night. Watching for what? Nothing...but everything. I truly believed if I didn't look away... I was protecting my family from something. Each evening, when darkness came and the day ended, I was scared—so full of anxiety I could not breathe. So many hours I spent at those dark windows...feeling assured that was the only way to be brave, and I was the only thing left to protect my babies.

Some nights that same fear comes and shows its ugly head—beckoning me to stay a while. Begging me to hate the dark for fear I cannot see what is hiding in its blackness.

Only a few things have changed. I am brave in a different way. I know now what I didn't then—I am nothing. It is not my strength that will get me is His. It is not my power that will protect my babies—it is grace.

With that truth I can look back to that broken girl staring out the window and tell her all the miracles she was missing—thinking she would have to save herself—and help her remember the light that was too hard to see. She was never alone.

It isn't the dark that holds us is our failure to remember the light that has been with us all along.

Every night turns to day. Sometimes those nights are long—and an extra dark fog covers the light of the stars...but eventually the light will win...because it is never lost. Hold on. Don't quit. Never stop fighting. Being brave is realizing how powerless we are—and fighting anyway...

Don't be mad at the darkness—it is what makes the light so bright. Miracles happen even in the dark...they are just harder to see.

September 23, 2016

Mission Statement

I have been working on some things for my conference coming up and tonight I felt impressed to write a mission statement. I am so humbled to be part of something that is so much bigger than me. What a blessing it has been to build a community of fighters who know the pain I have felt in my life and who are still so brave and beautiful. Every story that has touched my life has changed me for the better and I am so thankful for friends I have never met who have carried me so many days out of my own dark fog. I love each of you. Your stories are as beautiful as you are.


I have received so many emails since they aired another version of our story on Dateline NBC a few months back, asking where to find the link. So here it is for everyone who was looking for it. I added it to the media tab on the blog as well. Hope everyone is having a great Friday.


September 22, 2016

Truths to Remember

I try not to listen to the news, not because I don't care . . . but I think I care too much. My heart hurts when I hear some of the stories that are happening around our world. Some recent events made me think of this post again. 

The more we keep forgetting these truths, the more we are going to keep hurting each other.

T-shirt Giveaway

Another fun giveaway going on until Saturday. Positivitees Designs has donated two T-shirts (winners choice) to giveaway on Instagram. Go and check it out to win! 

T-shirt options:

Inflatable Chair winner

The winner of the Inflatable Chair is Amanda McDonald. Please email me your address and what color you want and I will get it sent your way!

September 20, 2016


I love doing giveaways, especially when it is something I want myself (don't worry I can't be chosen as the winner). Today we are going to be doing a giveaway with They are donating an inflatable lounge chair. Winner gets to choose their color!

Just leave a comment here and make sure you leave your name! Also go to the post on Instagram or Facebook and tag some friends. Winner will be announced on Thursday night.

They have donated a few things to be raffled off at the conference in St. George on October 22nd so if you don't win here, we will see you there.

Here are the colors available to the winner:

September 19, 2016


Had a great interview with 2 News Fresh Living in Utah that aired today. So excited to be working with Dawn Armstrong and many others for October 22nd in St. George. Click on link below for full interview.

Why Me?

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